Friday, August 1, 2014

The Lazy River

So I am not sure if everyone knows what ALS does so I will give you an example of what it does.  The kids and I are spending a day at the Wisconsin Dells and being the superb dad that I am I try and go swimming briefly and maybe see if the lazy river can be lazy enough for me.  So what happens with ALS is that your muscles slowly atrophy until they are gone.  So on a daily basis I am adapting to ne things that I can't do or need to do differently because the muscles I used previously don't exist anymore.  So anyway I decide to go in the Lazy River with my sister becuase the Lazy River is supposed to be, you know, "Lazy".  I get into the water and immediately notice the water current is actually quite strong and starts pulling me in quicker than I want to go.  Then Sharon helps me put a tube over my head because I can't actually lift one anymore over my head.  Then with a tube and quick current I put my arms (with difficulty) on the tube and cast off.  I immediately realized that this might not have been the best idea.  The current took my legs out from under me and I had to support my body on the tube with my arms which by now are not very strong.  So I manage to get up a bit and turn my tube so I can use my legs to stop my forward progresssion and readjust on the tube.  I do that and get going again.  Before long the current gets my legs out again and I start hanging on to the tube with my head because my arms are clearly not doing the job.  I spot an entrance not far off an decide to make my way over but I am no match for the tremendous current of the Lazy River so I do what any normal person does.  Ditch the tube, bring my legs under me, grab for a side and pull myself up.  Sharon realizing I was in mortal danger swims over and gives me a little help.  So after a fantastic rescue from Sharon and Ben we get out and I am thinking to myself that I need to rename the Lazy Rive to something more fitting for me, like the "River of Death".  Anyway I have decided that this is one excersize that I may not do again.  I am adding it to the list of other activities I have given up like skydiving, waterskiing, and running marathons (actually lets be real just running, or walking fast actually).  So anyway thats life in the ALS lane.  Never a dull moment.



8 comments:

  1. Your attitude and those of your tribe -- absolutely amazing! Thank you so much for giving us a part of it.

    ReplyDelete
  2. I second that Jon!!!! This is Sara btw from Lakes...can't seem to figure out a way to sign in with my name! Lol! Anyways, thank you so much to both of you for doing the blog! Your attitude and that of your family is truly an inspiration!!! I was hoping for some updates from somewhere but didn't know where to turn! Miss you!!! And I was wondering if anyone you know was going to do the ALS walk coming up! I thought we should have a team Neu if one doesn't exist already!

    ReplyDelete
    Replies
    1. Thanks so much! Love the idea of setting up a team! We'll work on that. -Anne

      Delete
  3. Thank you so much for sharing your difficult journey with all of us! Your ever-present smile and courage are such an inspiration, we love you guys! Kitty Schupp (I also don't know how to sign in on this post)

    ReplyDelete
  4. No pictures? Now that we know you made it out okay, I really wish Ben would have captured a picture! We are so glad you survived the River of Death and share your story with such humor. Love you Neus!

    ReplyDelete
  5. Don't hate me but I kinda wish I was there to see it especially the heroic rescue by Sharon and Ben. Love you and thank you for sharing your story.

    ReplyDelete
  6. I just found your blog today thanks to FB. For all the time we have been in the same ward I have admired your family. You all seem to live a life of honor. Something I would like my family to emulate. I had to go back and read every post. Then reread them to Cheryl. All of your courage is amazing. But the best part is I think I know where your strength comes from and cant help but admire your family all the more.

    ReplyDelete
  7. Thank you so much for all the kind words! Mark, you are absolutely right. Strength has nothing to do with us and everything to do with Him.

    ReplyDelete